Our Mission: Our mission is to find the cure for Rett Syndrome.
The Samantha Corpus Foundation’s beliefs and purposes are:
The belief that the cure for Rett Syndrome is within ten years.
The belief that the treatments for symptoms of Rett Syndrome are achievable much sooner.
To support, fund, and accelerate research for the treatment and cure for Rett Syndrome.
To increase public awareness of Rett Syndrome.
ABOUT RETT SYNDROME: Rett Syndrome is a debilitating neurological disorder diagnosed almost exclusively in females. Children with Rett Syndrome appear to develop normally until 6 to 18 months of age when they enter a period of regression, losing speech and motor skills. Most develop repetitive hand movements, irregular breathing patterns, seizures and extreme motor control problems. Rett leaves its victims profoundly disabled, requiring maximum assistance with every aspect of daily living. Though Rett Syndrome may affect males, few are known to survive pregnancy. There is no known cure. Our best hope is through research to understand and develop an effective therapy to find the cure.
OUR GOAL: Raise money to increase public awareness of Rett Syndrome, fund research for treatment and, ultimately, a cure.
OUR BACKGROUND: Samantha was diagnosed with Rett Syndrome at age 3 ½. While most children are learning their colors and shapes, Samantha was seeing medical specialists at The Blue Bird Circle Rett Center of Baylor College. Samantha is a high functioning girl with Rett Syndrome and Samantha is seizure free for the most part, though she cannot speak and has developed the hallmark repetitive hand wringing. Samantha is 17 years old and lives with her parents John and Kathy, and her two brothers, Julian (19) and Jacob (14), in Alamo. Samantha has a smile that will light up a room and an innate fighting spirit. She is an active and very social little girl who can run, skip and jump. Samantha receives physical, occupational and speech therapy through her school and also participates in music therapy, dance therapy, special needs soccer and basketball to increase the quality of her and her family’s lives. Samantha is a very special girl taking on great challenges!